Friday, August 26, 2005

My Dammit Doll


I just had to share the cutest gift I received yesterday from my good friend Deon. Deon is also a breast cancer survivor and has been done with chemo for 6 weeks now. She made this "Dammit Doll" for me with the following card attached:

"When you want to throw the phone or kick the dog and shout...Here's a little Dammit Doll you can not live without! Just grasp it firmly by the legs and find a place to slam it! And when you wack it's stuffing out...yell Dammit, Dammit, Dammit!"

Notice the little band-aid over the breast...isn't that adorable!!

People have been so thoughtful and good to me! I am very lucky to have such wonderful people in my life!

I had my second to last treatment yesterday! I am starting to feel the effects! I just keep reminding my self it's almost over...I can do it! My sister has the girls again today...it feels so nice to relax and not have to worry about them...thank you Lynne! I am blessed...very, very blessed!

My Recount of Diagnosis Day

I wanted to write about the day I found out I had Breast Cancer. Like I mentioned in my first entry it was May 25, 2005 around 1:oo pm. I was at home and my surgeon Judy Jones called my house. She told me she had the results of my lab work. I was sitting at my kitchen table… a scene I will never forget. Her office had called me earlier that day to ask when I would be at home. They had told me Dr. Jones wanted to talk to me and asked when she could call. I asked the receptionist if that meant bad news…which she of course told me she didn’t know.

Dr. Jones called and asked if I were driving and told me to sit down. I asked her immediately if it was bad news. She told me it was very bad…that it was cancer. I asked her if it was breast cancer, and she replied “oh yes and it’s bad”. I felt like the blood had drained from my head to my toes and I ran cold. I couldn’t believe what I was hearing. I asked her what that meant for me and she said you will probably have to have chemotherapy, radiation, and most likely a mastectomy. I was writing this down and I kept looking at those words in horror…Chemo? Radiation? Mastectomy? Right then my baby started crying and her pager went off. She told me she would call me right back. That’s when I started crying. I went back into the kitchen and doubled over to my knees by the kitchen counter. I couldn’t control my emotions. My little girls were there and they started crying because I was. I felt so bad, but I couldn’t stop. I just held them and we all cried.

The phone rang again and it was Dr. Jones calling me back. I still couldn’t stop crying. She said “I know this is a shock…it was to me too. I just didn’t think it was cancer, I am so sorry”. She told me I needed to get into an Oncologist by Friday and start treatment immediately. Apparently the tumor that was removed was aggressive and large. She asked me if there was a preference of what Oncologist I would want to go to…I didn’t even know what an oncologist was! She said she would have her office call and make an appointment and call me back. She gave me the names of two doctors in town and I picked Dr. Shull…I am so glad I did!

Next I called my husband and managed to get out the words…”it’s breast cancer”. Luckily he was working in town. He said he would be right home and hung up. Next I tried calling my Mom and Dad. They didn’t answer. I left a crying message to call me back as soon as possible. They called back very shortly and my Mom had just seen my name on caller ID and not heard my message. I said “Mom, its breast cancer”. I will never forget her response. It sounded like I had kicked the wind out of her. She let out this painful gasp of air and said “Oh Dana No”. I cried as I tried to explain what the doctor had told me but I could barely get the words out…let alone the words “breast cancer”. What scary words. I was hysterical and as usual, even though she was in shock and pain, she calmed me down and helped me get a hold of myself, only the way my Mom can do. We talked a while and she told me she would tell my Dad and call me back later. My Mom said to me “ I wish I could take this from you”. I remember telling her now that I was a mother, hopefully I was the one taking it for my girls…I know my Mom would have taken it from me if she could.

Next I called my sister Lynne who lives fifteen minutes way. I told her it was cancer, her reaction was “Oh no you’re kidding me”. She asked if I wanted her to come down…I told her I did. I needed to talk to people and I needed loved ones around me. Next I called my friend Becky and told her. I asked if her and Alan could come over and Alan could help Brent give me a blessing. She was very matter of fact and calm, but she came over and offered comfort and told me I would be okay. Alan and Brent gave me a blessing, which was of great comfort.

When Brent came home he just hugged me and asked if I was okay. I know he was in shock and I can’t remember if he cried. Dr. Jones’s office called back and said I could get into the Oncologist in the next hour at 3:00 pm. I needed to go…I needed answers…I needed to know. I took the appointment and Lynne took the kids.

We went to Dr. Shulls’s office that afternoon. I was scared to death. I remember the office staff was so nice and friendly. The nurse Patsy took my vital signs and set me in a waiting room to see the doctor. He came right in. He was young, friendly and direct. I was relieved.

Dr. Shull began going over my pathology report with us. I know I didn’t understand most of it, but it sounded very scary and hopeless. I had a tumor the size of an orange…off the scale. Tumors are measured on a scale of 1-5 in terms of centimeters….mine was a 10. On a scale of 1-9 in terms of aggressiveness, mine was a 9. The tumor had gone to my lymph system, and was not estrogen sensitive. The odds seemed against me.

I kept thinking “they have the wrong person…they kept telling me this was nothing…now it’s cancer!” It was a surreal moment and my mind felt muddled. I was crying uncontrollably. Dr. Shull was very reassuring that he would do everything he could. He stated “I want you to die an old lady of something else.” What a cool way to put it. I instantly trusted him.

Next Dr. Shull told me I would probably not be able to have more children because chemotherapy usually causes young women to go into early menopause. I was devastated and began crying again. That news was almost harder to hear than being told I had cancer. We had always felt there was one more child that belonged in our family.

This year we had gone back and forth about getting pregnant again…it just didn’t feel right. When we planned our two girls we KNEW instinctively when to get pregnant. We had not felt that same feeling this year and went back and forth, now we know why. Can you imagine finding out you had cancer while being pregnant. I feel this part of my life is truly in the Lord’s hands. If we never have more children I feel SO VERY BLESSED to have the three girls I do. I have a beautiful stepdaughter, and two girls of my own. I will never regret what I have!!

After the doctor went over all the reports he set up additional tests he wanted to have done at the hospital. It was Memorial Day weekend and we were to meet with him again on Tuesday to go over the test results.

We left Dr. Shull’s office and I knew I needed to make more phone calls and inform people of my “news.” I remember thinking… “Should I tell people, maybe they have the wrong person”. Then I would think “No, I saw my name on the report and he told me I had cancer.” I just couldn’t wrap my mind around it. I called my boss, who is a great guy. I told him I had breast cancer and then burst into tears once again. I told him I would need to take some time off. Of course he was gracious and told me not to worry about a thing. He told me I could do what ever I felt needed to be done and he would support me all the way. I was relieved.

I decided to call my sister Leigh next with the news. She was very upset and started crying hysterically. I knew she was under considerable stress at the time, but it scared me because it made it real that I had cancer. I felt overwhelmed and frightened. When she calmed down and absorbed the news she offered comfort. She also offered anything I needed and was very caring. Next, I left a message for my best friend April to call me back. She called back while I was gone so my husband told her about the diagnosis. I talked with her later that night and we cried and cried. She said she wanted to take it for me and would do anything I needed. What a friend. I felt love and support from the people whom I cared about the most.

When I got home that night after a long, excruciatingly, and mentally draining day I had several messages on my machine of well-wishers and people wanting to know what was going on. I spent the rest of the night calling people I felt needed to know. I called my visiting teacher Kristy from church and told her the news. We are in the Relief Society Presidency together. She was in shock like the rest. She wanted to know what she could do. I went over the story about what had happened and I got calmer every time I told it. I was starting to be able to use the word breast cancer, and I got a little less weepy and calmer each time I recounted the information. I called my Relief Society President. She was so helpful and offered service like the rest. I continued to call people from the ward I felt needed to know, each one offered prayers and service. They offered anything I might need.

By the end of the night I was drained to my very core. I couldn’t make one more call. I decided to email a few friends I felt deserved to know, but that I hadn’t talked to in a while. I emailed several people as tactfully as I could and broke the news. Again, the response was tremendous and supportive from the amazing people in my life. I received calls, emails, and cards. I was overwhelmed by the support I was receiving…I truly didn’t think people would care as much as they did. I felt waves of peace and gratitude.

That night although I was completely drained and could no longer cry…Yet, I could not sleep. I spent the night praying like I have never prayed. I truly felt a peace that everything would be okay. I knew in my heart why I was experiencing this trial and I became aware of some of the lessons I was to learn. I recalled a prayer I had offered a couple of weeks earlier that I could overcome some of my shortcomings and that I would be shown my weaknesses. I told the Lord I would do what it takes to change them…little did I know it would take something like cancer to change those things I promised to change. I still vow to change them and pray I can learn what I need to. I believe with all my heart all things happen for a purpose. Another woman cancer survivor sent me a card and in it she wrote…”the Lord does not send us to earth to fail, he sends us to overcome trials and learn lessons, and find great happiness”. That I believe to be true.

Through out the week I continued to receive calls from people. We received goodies on our doorstep, meals, cards, gifts…but most of all people offering prayers and putting our names on the temple prayer roll. That meant the very most. I felt that was one thing I couldn’t do alone. I needed the prayers from good, faithful people in my behalf…what peace and comfort that brought and continues to bring. The ward offered a fast in my name, which was very humbling. I felt so grateful, so loved, so supported through what I knew would be one of the most difficult times in my life. I felt people circle around me…I can’t describe what that felt like and continues to feel like. I am blessed.

I emailed a dear friend of mine Shelley to call me when she got a chance. I didn’t have her current cell phone number. She called early the next morning and wanted to know what was wrong. She sensed something wasn’t right. I told her about the cancer and she said, “I’ll be right up and hung up”…a three hour drive to my house. And she did, she arrived three hours later and offered her love and support. Again…I felt blessed.

Over the next couple days I had several scans done, including a CT scan, heart Doppler, and PET scan. Dr. Shull also wanted to do a bone scan since I had just started having pain in my lower back. Waiting for that test was probably the most anxiety provoking. If the cancer had spread to my bones I felt that my prognosis would be even worse. The radiologist read the scan and immediately told us he didn’t see a problem…what a huge relief! Once again, I was very blessed to have Shelley and Lynne there to help watch my girls while I was at the hospital and doctors’ offices.

That weekend we went to my parents 50th Wedding Anniversary in Utah, 3 hours from home. I was worried about my news overshadowing this exciting event. The party went beautifully and it felt great to be around loved ones and friends. I was so proud of my parents and their accomplishment of staying married for 50 years and showing us such an amazing example of love and dedication. Again, I felt encircled by people who wanted the best for me. I have learned we truly are all connected together. I can now see the importance of eternal families. How grateful I am for that knowledge. As a family we were able to all attend the temple together. I felt the Holy Spirit so strong and the prayer circle brought greater meaning than ever before….mostly knowing my name was on that roll and those faithful people were praying in my behalf. Tears streamed down my face….tears of gratitude.

Spending time with my family was so refreshing and comforting. We were able to laugh and cry…and even make jokes. I wanted people to be at ease and not feel uncomfortable around me. Laughing is what I know to do…so laughing is what we did. We had a great weekend. I felt rejuvenated enough to go back to the doctor on Tuesday and face the music. I have a wonderful family, wonderful parents, darling nieces and nephews, amazing friends.

When we came home and went back to Dr. Shulls office for test results. The PET scan showed a 4 cm tumor left in my breast, but it was undetermined if it was cancer or scar tissue from the lumpectomy. I also had another 1 cm tumor in my first lympnoid. The Doppler of my heart showed it was strong. And like I said before the bone scan was clear. We set up a treatment plan and decided to start me on chemo in two days. I would receive Adramyican and Cytocin for four rounds, then I would be switched to Taxol for four more treatments.

So here I am. I have one more treatment in two weeks. I had one today…I am almost done!! I have never been so glad for summer to be over in my life. I am especially grateful it is cooling off and the heat is subsiding. Even though I have cancer, I have learned a million lessons in such a short period of time. I heard a saying I may have written before, but it really says it all. It goes, “Through adversity you can either become bitter or better”…I will choose to become BETTER.

Wednesday, August 24, 2005

Good News!!

I got great news today! I had the genetic testing done for the BRCA 1 and BRCA 2 genes....and I was negative! The test took a month to process, what a long wait! The recommendations for positive results would have been a double radical mastectomy and radical hysterectomy to remove the ovaries. The breast cancer genes help determine ovarian cancer as well. I was so relieved! The doctor told me the news and I started crying and hugged him. That is one worry off my mind... and that also means the chances my daughters will struggle with breast cancer is lower now too.

Prayer really does work! I am grateful for some good news! What a relief! I only have two more chemo treatments, then surgery. They will determine if I will need another lumpectomy or a mastectomy then.

Wednesday, August 17, 2005

New Title: Journey through Hell...

I have decided I should rename my blog from 'Journey through Breast Cancer' to 'My Journey through Hell'. That's certainly how I have felt the past few days. This treatment has been so rough, I literally wanted to die. I started getting hot flashes again Monday afternoon and couldn't get comfortable. One minute I would be drenched with sweat, the next I would be freezing, kind of like the flu. I wasn't in too much pain and thought I had lucked out this treatment.... boy was I wrong. I woke up at 2 am throwing up and spiking a temp just like a month ago when I went into the hospital. I couldn't keep anything down, not even water. I was so absolutely miserable! I was in SO much pain I couldn't move my body. My legs felt like they had been broken and I had stabbing pain all over my body. I couldn't keep any anti-nausea medications down, so that meant no pain meds would stay down either.

My husband called the Oncologist office early and they told him to bring me up. I was so mad, first, because I could barely walk and the thought of getting dressed wore me out. Second, I was afraid I would be admitted to the hospital again. He finally got me to agree to go and took me up there. They got me in a bed, put in an I.V. and gave me pain medication and anti-nausea meds. I felt much better after being re-hydrated...the morphine didn't hurt either :)

The staff there is excellent and so nice! I love Snake River Oncology as much as you can like a place like that! Dr. Shull is awesome! Not to mention my bill will hopefully be a lot less that the $5000 hospital bill I just received from last month!! The receptionist also made a kind comment to me. She said she has worked in the medical field for 15 years and she has never met a husband that is as supportive and caring as mine. Her and another lady in the office went on about how kind and caring Brent is. I felt so grateful again for such a great husband. He has been my rock. He has been there for me every step of the way and he still manages to find time to work full-time and still be a great Dad to his girls. I love you Brent!

My sister Lynne came over that morning and took my kids for a couple of days. It was such a relief to know she had them and they were being taken care of, and I didn't have to worry. I knew I couldn't do it. As a mother...that is the worst feeling knowing you can't care for you children. It's a mixture of guilt, frustration, and sorrow...even humiliation. I am grateful for those who help us in our time of need. Words can't express my gratitude.

Today, I have relaxed and rested. My sister still has the girls. When I talked to them they told me they wanted to stay and play at Aunt Lynnie's. Maybe it's because she lets them eat ice cream and chocolate for lunch...or that they know they are loved. Either one I am relieved.

I have been writing about my experience of being told of my diagnosis and having to tell others. I will try and post it soon. I am also still waiting to hear back on my genetic testing. I have been very concerned about the results because of the indications it would have on my surgery... which is coming up. If I have both the BRCA1 and BRCA2 genes that means a double radical mastectomy at age 32, plus removal of my ovaries. It's a lot to consider. But, for now only two more chemo treatments!! Yeah!!!

Sunday, August 07, 2005

Roller Coasters and Wedding Dresses

I feel like I'm on a roller coaster...one of those old rickety ones that shake as you're going up the big hills that you fear might breakdown in the middle of the ride. One minute I am feeling better emotionally and physically. The next I'm screaming going down a huge hill on the roller coaster. I have been so weepy this weekend. I don't know whether to blame it on the chemo, the medications, hormones, depression. I layed in bed last night and cried myself to sleep worrying. I don't trust my emotions, my instinct, or what others think will happen to me. For so long everyone was telling me "it's not cancer". Then it turned out to be cancer, now everyone is telling me..."don't worry, you're going to live through this". What do I believe? I feel scared and hopeless at times. I try and keep a positive attitude, but it's hard when I feel like I'm facing my mortality, and I'm not ready. I feel alone and isolated like no one understands what I'm feeling...not just the physical pains, but the emotional ones.

I worry about my children the most. Will I be there to see them go to kindergarten? Prom? Graduation? College? Marriage? Will I be there to help them make big life decisions? Will I be there to teach them what they need to know to make it in this life? Will I be here to help them pick out their prom dresses...wedding dresses? I'm scared, I want to be here.

The stress is getting to both my husband and I. He tries not to show it, but I know. Trust me I know. Figuring out how to pay all the medical bills and living paycheck to paycheck is enough to slam down anyone. Just getting to the day to day things are a burden. I try to have faith, but I'm worried and falling short. My husband tries to reassure me...but he doesn't know what's going to happen, nobody knows....no one but the Lord. I guess I need to have faith and give the rest to him...there's nothing more I can do.

Friday, August 05, 2005

A Better Day

I wanted to write because today was a much better day than yesterday! My sister-in-law came over today and we got the kids lunch and took them to the river for a picnic and to feed the geese. It felt SO good to get out of the house and watch the girls run and play. I felt a million times better today...I actually felt a live and well. It's amazing to me that one day I can feel like I'm on the brink of death and the next I felt alive, I feel "good".

I loved watching my beautiful girls feed the geese. My two year old would scream with excitment everytime one ate her bread. My four year old was off trying to feed a squirl. It wasn't too hot and the day was beautiful. I felt fulfilled as a mother watching my girls have fun, get fresh air, and excercise. They are my reason to live and and get well. Tonight after my husband got home we took them to the park. They played hard and we enjoyed watching and playing with them. It was a good day. Anytime I feel good enough to go out is a good day.

People are kind. They watch me, they either smile kindly or hurry and look away. I don't wear a wig....I hate the thing. I mostly wear scarves or hats or turban type hearwear. I feel more comfortable that way. The wig feels like a tight pair of jeans on my head and gives me a roaring headache! It's hot and itchy and I feel like it looks "fake". I have gotten used to just wearing a hat. It's been interesting watching other's reactions to me. I almost don't even notice anymore. I'm a pretty self-assured person so it really hasn't bothered me, it has just taught me a good life lesson on how to treat others who are different.

Another thing I wanted to mention was my photostream on Flickr. I finally got some pictures up if anyone is interested. They are on a group called "Too Sexy for my Hair". It's a great site for people who have cancer. The link is: http://flickr.com/photos/51176089@N00/
I want to hear your comments!

I must go to bed! Goodnight!

Thursday, August 04, 2005

Wishing it were September!

Today...like the last few have been incredibly boring and frustrating. My kids are crawling up the walls and so am I. Church arranged for people to take the kids for a few hours a day. Today, no one showed and we all could have used a break. They are as irritable as I feel. Or maybe that's the other way around. I feel so guilty that I can't take them places like I used to like swimming or to the park. I feel like I can hardly function. Just keeping them fed and dressed is a miracle some days. I try to always make sure they are bathed and their hair is done. I fear people will think "Oh, poor kids...their Mom has cancer...she just can't take care of them". Just writing that makes me want to cry.

My four year old knows I can't chase her to make her do what is asked...and she is getting more and more whinny and defiant. I don't know what to do...I could use a visit from the "Super Nanny". Some days I just feel helpless...worthless. I want to fight this ugly disease so I can raise my children...in the mean time raising them is harder than ever. I do love those little stinkers more than life it's self.

I feel like my patience is running thin and my sense of humor is drying out. Only three more treatments...

Monday, August 01, 2005

Taxol

I just started a new chemo drug called Taxol on Thursday. I don't feel as sick to my stomach like I did on the A/C but I feel so much more tired and achy. I keep getting little stabbing pains in my extremities and my hands and feet are killing me. The day after treatment, I could barely walk. I have this rash that runs on the inside of my arms and my face. I am SOO tired I can't even describe it. I slept for the past two days. Thank good my niece and husband have been home to take care of the kids. I feel helpless at times. My mind is willing...but my body won't follow!

I got this killer package from a woman in California that administrates the website on Flikr called "I'm too sexy for my Hair". Her name is Lori Miller and she is a cancer survivor as well. She is so inspiring. She sent me some Burt's Bees stuff for hands and feet, some awesome slippers, and a personalized Voodoo Doll. It was so totally great! I could tell she has been through this treatment just by the package. The lotions helped so much with the sensitive skin and the slippers with the sores on my feet. Oh great wisdom of those who have passed before me!

My sister's family came by tonight to pick up my niece that stayed with us this week. We had a great time catching up and laughing. I just need to laugh sometimes about this crazy situation...or I would explode! We had a good time. It was so helpful to have McKenna help with the girls. I hope she wasn't bored out of her mind. Anyway, we appreciated her willingness to serve our family!

I need to get, yet, some more sleep...I have no control. When it hits, I go lay down. My body quits functioning whether I like it or not. So, off I go to bed! Goodnight!

About Me

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Idaho Falls, Idaho, United States
I am a 36 year old woman, married to a great guy, and together we have three beautiful daughters. I am a three and a half year breast cancer survivor. This past year I have become active in the cause of helping those who are batteling cancer!